The Myotubular Myopathy Resource group centronuclear myopathy is dedicated to connecting, education and supporting affected families and supporting research.
The Myotubular Trust promotes the relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy
The Myotubular Myopathy Resource group centronuclear myopathy is dedicated to connecting, education and supporting affected families and supporting research.