The Myotubular Trust promotes the relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy
The Myotubular Myopathy Resource group centronuclear myopathy is dedicated to connecting, education and supporting affected families and supporting research.
The Myotubular Trust promotes the relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy
Presentation. MFM, Motor Function Mesure, is a myopathy scale to measure the functional motor abilities affected by a neuromuscular disease. Some motor function tests can specify the evolution of neuromuscular disorder or muscular dystrophy.
The Myotubular Myopathy Resource group centronuclear myopathy is dedicated to connecting, education and supporting affected families and supporting research.